Hi good friends, I hope you all have been well and that you are kicking off summer time in the ideal way doable!
So a lot of of you have achieved out to ask how Dominic is doing and whilst I share a quick image on Instagram stories occasionally, I required to pop in swiftly to give you an update.
Given that I previous wrote, Dominic has finished cycles two and three of chemotherapy. The two made him unwell 1 day of the therapy but with a tweak of the nausea meds, he was feeling superior.
His new favored in-medical center exercise? Songs therapy! He gets this kind of a large kick out of actively playing the devices 😁
He is also Incredibly into everyday bingo 😍
On the previous working day of his second cycle, he had the option to tour the helicopter pad on the healthcare facility roof, which he Liked. The view was wonderful and we discovered plenty of pleasurable specifics (mom loves a excellent field vacation, ha)!
Although house, he continues to perform and rather significantly enjoys everyday living as standard, which include plenty of outside the house time now that it’s awesome out!
Among rounds two and three of chemotherapy, we traveled to New York for Dominic to be seen at Memorial Sloan Kettering, exactly where they have a staff of pediatric oncologists who specialize in neuroblastoma.
He is being taken care of below their guidance, so significantly receiving all of his chemotherapy in this article in Pittsburgh, but we will journey there for his tumor removing surgical treatment.
We both of those had our very first Uber journey, experienced Shake Shack for the initial time (SO Good), and Dominic had his 1st keep in a hotel. A thriving excursion, but there is definitely no put like household!
Our New Standard
We are receiving quite utilised to the signals of minimal hemoglobin (two times in a row of using a lot more consume breaks than usual while taking part in outside? We guessed he was likely to need to have blood when he went to his clinic appointment the next working day and, certain plenty of, he did) and small platelets (a lot more bruising). He has had a number of transfusions of both equally given that commencing this journey, so a excellent huge thank you to any person who has ever donated blood, as we are now so a great deal extra acutely aware of the relevance of this selfless act.
Hemoglobin, platelets, white mobile counts, neutrophils, and ANC numbers are now just prevalent dialogue listed here.
We have all type of settled into our new routine of treatment options, visits to the medical center, running remedies, line flushing, and so on.
The largest hurdle considering that this final cycle of chemotherapy is that we have experienced to give Dominic day-to-day pictures (vs the a person-time photographs just after the very first and next rounds) and it is the absolute worst. He has constantly hated photographs and he just dreads them, I get anxious, and it’s just a full SCENE. The everyday pictures have been utilized due to the fact of his impending stem mobile harvest, to guarantee his counts had been robust (see beneath).
This coming week, Dominic will have a stem mobile harvest, exactly where they will insert a momentary line to extract stem cells (which will then be stored) should he require them in any potential all through treatment method down the road. It is our hope that he would not, but they will be there if he does.
The up coming substantial move is in two months when he will have his tumor elimination surgical procedure. Next the surgery, he will have a further round of chemotherapy and then a handful of weeks immediately after that, a battery of tests and scans to see where by we stand with the ailment.
Remember to go on to pray that the most cancers is responding to treatment, that the surgeons are capable to clear away the tumor securely and successfully, and that he has a reasonably simple recovery.
Pleasurable at Home…
A several more shots of the little ones from the latest weeks ❤️
Wishing you all a entertaining and protected start off to your summertime! ☀️❤️