Good day good friends!
I hope that your summer months has been absolutely amazing ☀️
I’m popping in today to offer an update on Dominic so a lot of of you have created and questioned how he is accomplishing, and how the medical procedures went, and I thank you for your tolerance!
Very first, a Thank You
The outpouring of lovely cards, postcards, and items that have been despatched to my PO box has been so heartwarming. Our family is fully and completely humbled by your thoughtfulness, and we thank you from the base of our hearts for taking time out of your working day to do anything that would carry a smile to Dominic’s experience ❤️ THANK YOU!
Surgical procedures Update
Dominic had his tumor resection medical procedures on Monday, June 20th at Memorial Sloan Kettering in New York. He went into the running place at 9:30am and arrived in his place in the pediatric ICU all over 6:45pm. Leaving him in that operating home was gut-wrenching, but an OR nurse was ready to supply updates on a typical basis all through the day, which created all of the ready substantially fewer agonizing. The surgeon was capable to remove his complete tumor, as well as all of the diseased lymph nodes that have been identified in his neck, abdomen, and pelvis. He was steady all over the whole operation, missing extremely little blood, and only stayed in the ICU for two days.
The surgical procedure basically could not have long gone any far better and we are just so grateful to the surgeon and for all of the prayers that were despatched up for Dominic and the surgical staff that day. There is 1 rogue lymph node down below his still left clavicle that the surgeon knew likely in was not in a position to be arrived at from both the neck or the thoracoabdominal incision. It will be re-scanned and both removed via a scope procedure or if it has shrunk sufficient, radiated.
Restoration was incredibly gradual heading the initially couple times having just a handful of actions was hard for Dominic and it was so tough to see him battling and turning into exhausted by such uncomplicated actions. He had a upper body tube and catheter for 4 times publish-medical procedures, and an belly drain for a 7 days, which didn’t support! But it was also wonderful to see what a distinction just a couple of times could make. Doing the job with PT and OT was fantastic and inside a week he was going for walks back and forth to the playroom in the clinic.
A few of days immediately after surgery, they found out a chylous leak (in essence, fat leaking as a result of the lymphatic program), which we were informed beforehand would be a possibility for the reason that so many lymph nodes would be eradicated. It was the only real complication article-medical procedures they taken care of it with medication and a minimal-body fat diet regime for about 5 times and it resolved.
A 7 days after surgical procedure, Dominic commenced his fourth round of chemo. This a person strike him the toughest, possible due to the fact he was even now recovering from surgical procedure, he misplaced his hunger for a amount of times, had some nausea, and was extra worn out than usual. We had been in a position to head again property just after that cycle of chemo was comprehensive, 11 times just after his surgical procedure.
The surgeon indicated that comprehensive restoration will just take about two months, but that walking and mild exercise is wonderful for him, so he commenced by strolling our driveway and cul de sac and obtained again on his pedal kart bicycle (bicycle using was medical doctor-approved) for some simple rides. He has little by little regained a lot of energy, as perfectly as variety of movement, and is driving his bicycle more rapidly and is up and participating in like typical.
Just one of our major hurdles due to the fact acquiring dwelling is that he just wasn’t again to himself for really some time, which we had been told was entirely normal. He was lethargic, not talkative, not intrigued in actively playing, and we all skipped our Dominic!
Aspect of the problem is that it took him a great deal for a longer period to rebound from this past round of chemo than any of the former rounds that he had. His white counts sat bottomed out at or around zero for two comprehensive weeks, and he required 3 platelet transfusions and two blood transfusions within a week. We logged some Long times at clinic the week following we got again.
The other situation is that he experienced extended decline of urge for food right after chemo and had continued to lose weight (and he was very little to get started with!). As a result, the physicians started him on an urge for food stimulant a week in the past and it appears to have kicked in around the very last couple of days due to the fact he’s been having so a great deal improved and obtained a minor more than a 50 % pound due to the fact his clinic appointment final week.
All of his counts started off coming again up in the past couple of times and he has not desired any transfusions due to the fact early final 7 days. We’re so grateful he’s finding again to his outdated self, slowly but surely but absolutely!
Up coming Steps…
Next 7 days, Dominic will undertake a battery of scans and a bone marrow biopsy to see the exact position of the disorder write-up-surgical treatment and soon after completion of chemo.
Soon thereafter, he’ll start off his initial round of immunotherapy antibody therapies, and then have radiation. The more time-phrase plan is that he will have at minimum five rounds of immunotherapy remedies, spaced out about a month apart. Scans will be finished immediately after each two rounds to see how issues are wanting. Asking for plenty of prayers that we get clear scans as before long as doable 🙏🏻
Thank you all so a great deal once more, for achieving out and inquiring about Dominic, for maintaining him in your prayers, for showering him with playing cards, and for continuing to enjoy on us as a loved ones. We experience you, and your kindness and prayers raise us up and give us strength.
I’ll share yet another update immediately after we get by means of our up coming methods! In the meantime, we’re soaking up each and every one day that we can all invest time together less than just one roof ❤️