November 30, 2022


The Food Universe

Dominic Update 4.0 – Brown Eyed Baker

Hello everyone! I cannot feel that we are on the cusp of Labor Day and summer time coming to a close. The past five to six months have been a full blur and this summertime, in specific, has flown by. There’s been hospitals (chemo, stem cell harvest, surgical procedure), clinic appointments, and driving back and forth to New York.

But, a single foot in front of the other and just one working day at a time, we are grateful to be heading into a new season with a strong boy and hearts whole of hope.

Dominic experienced a active very first couple of weeks of August…

🔍 Very first, he experienced a new established of scans (MRI + MIBG) as well as another bone marrow biopsy. The scans nonetheless display disease during his bones but most of the spots are “dimmer” than right before, and the bone marrow involvement lowered by about 50%.

So, there is even now get the job done to do, but there is an improvement. And! Dominic did the two of the scans without the need of anesthesia (he has been sedated previously due to the fact you have to lay entirely nonetheless and the MIBG is about 2 hours). He’s a rock star.

🏥 Next, he experienced his very first round of immunotherapy. The antibody he’s specified targets the protein of neuroblastoma cells and considering that they typically sit on nerve cells, there is considerable nerve ache accompanying the procedure. The infusion is limited (45 minutes) but extreme.

There is a large amount of pre-medicine and soreness management throughout and following, and he would mainly snooze the entire rest of the day afterward. But, the therapies are outpatient so no medical center stays, and they do not effect counts like chemotherapy, so no neutropenia or blood or platelet transfusions.

🦸‍♂️ Then, he crossed off a different major hurdle… radiation. He did this awake with no anesthesia as well… two times a working day for five times, he was strapped down making use of a distinctive mask that was molded to his head and upper human body to keep his head and neck in the specific similar posture just about every time (his clavicle was radiated due to the cluster of diseased lymph nodes that ended up there, as well as the tumor bed in his abdomen). An incredible female who will work there has the little ones decide what they want their masks to be and then custom made paints them… Dominic selected Iron Person. There are some unbelievably specific men and women in this environment.

He could also choose whatever tunes he required to be piped in every time and selected Christmas music just about every day 💕🌲 He entirely rocked it and the people today doing work there had been absolutely phenomenal.

➡️ Next… we get to be home for a few of months, then it’s again to NY for one more spherical of immunotherapy, a new set of scans, and an additional bone marrow biopsy. 

📘 In the meantime, he started out kindergarten this week! He’ll be signing up for class nearly right up until his oncologist presents him the go-ahead to show up at in particular person, which we’re hoping will be late September.

💈 His eyebrows, eyelashes, AND hair have all started out expanding back again! He’s experienced a ton of strength, has attained back all of the body weight he missing after surgical treatment and that previous round of chemo and is normally accomplishing really, really effectively.

❤️ Thank you all for your continued prayers, it suggests so a great deal to our spouse and children.

In other news, I am arranging to get some emails scheduled out heading into the slide and vacation season to refresh some web-site articles. So, you can glimpse ahead to me popping into your inbox extra frequently in the coming months 🎉